A wall currently separates the Nant Clydach tributary from the street, but the environment body, Natural Resources Wales, said building a raised flood defence wall was "not economically viable".
Her mother Jenny said: "I'd say in Tilly's life at least about 10 times I've honestly thought that she's gone, she's died, with the seizures and going on to ITU and them all saying that we can't stop it and the panic."
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